Upcoming Events

You are invited to attend the Rare Diseases International (RDI) side event to the World Health Organization 72nd World Health Assembly.

Date: Thursday 23 May 2019
new Time: 18:00 – 20:00
Location: International Red Cross and Red Crescent Museum, Avenue de la Paix, 1202 Geneva, Switzerland (opposite the Palais des Nations, location of the WHA).

This informal side event will serve to promote awareness and knowledge on the topic of rare diseases and to unite the international community, the patient community and all relevant stakeholders to address the unmet needs of this largely ignored and vulnerable population within Universal Health Coverage.

The event will start with a drinks reception followed by keynote addresses and a panel discussion. Delegates attending the WHA will have the opportunity to meet with patient advocates and other stakeholders from the rare disease community.

This is a free, open event, so please spread the word and extend this invitation to your friends and colleagues. Please note that RDI cannot offer financial aid to participants to attend this event.

RSVP: REGISTER HERE

Event by RDI in collaboration with the NGO Committee for Rare Diseases.

Past Events

2019

Rare Disease Day Policy Event at the United Nations

Second High-Level Event of the NGO Committee for Rare Diseases

21 February 2019, United Nations Headquarters, New York

See details of the event here

2017

Rare Diseases International Policy Event 10 February 2017, Geneva, Switzerland,
The Right to Health: The Rare Disease Perspective

Rare Diseases International Policy Event
10 February 2017, Geneva, Switzerland, rarediseasesinternational.org 

See details of the event here

2016

Global Gathering for Rare Diseases: Inauguration of the NGO Committee for Rare Diseases
Global Gathering for Rare Diseases:

Inauguration of the NGO Committee for Rare Diseases

11 November 2016, United Nations HQs, New York, USA

See details of the event here