Past Events

21st February 2019

Rare Disease Day Policy Event at the United Nations

Second High-Level Event of the NGO Committee for Rare Diseases

Rare disease day

To mark the occasion of Rare Disease Day 2019, the NGO Committee for Rare Diseases organised its second high-level event at the United Nations. 

When: Thursday 21 February 2019, all-day event
Where: Conference Room 8, United Nations Headquarters, New York

Click here for more information on the event (programme, recording)

2017

Rare Diseases International Policy Event 10 February 2017, Geneva, Switzerland,
The Right to Health: The Rare Disease Perspective

Rare Diseases International Policy Event
10 February 2017, Geneva, Switzerland, rarediseasesinternational.org 

See details of the event here

2016

Global Gathering for Rare Diseases: Inauguration of the NGO Committee for Rare Diseases
Global Gathering for Rare Diseases:

Inauguration of the NGO Committee for Rare Diseases

11 November 2016, United Nations HQs, New York, USA

See details of the event here