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Member types

Regular Members

NGOs in consultative status with ECOSOC

Associate Members

NGOs in consultative status with other UN bodies than ECOSOC (e.g. WHO, DPI)

Supporter Members

All for-profit undertakings, e.g. private sector organisations

Individual Members

Persons actively working for the benefit of people living with rare diseases, or with a noted political or academic expertise on rare diseases

Observer Members

All other NGOs, governments, patient groups, academic institutions or civil society organisations / Non-profit only

Founding Members

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