Statements of Support to the NGO Committee for Rare Diseases

  • Baroness Jane Campbell – Independent Member of the UK House of Lords
  • Philippe Douste-Blazy – Under-Secretary-General of the UN, Special Adviser on Innovative Financing for Development in the United Nations, chairman of UNITAID and Former French Minister of Health (1993-1995 and 2004-2005)
  • Miklós Szócska – Former Minister of State for Health of Hungary, Director of the Health Services Management Training Centre of the Budapest Semmelweis University
  • Françoise Grossetête – Member of the European Parliament and Vice-Chair of the Group of the European People’s Party
  • President Tarja Halonen – Former President of Finland and Co-Chair of the WHO-OHCHR High Level Working Group for the Health and Human Rights of Women, Children and Adolescents
  • Dainius Puras – United Nations Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health
  • Federico Mayor Zaragoza – President of the Foundation Culture of Peace and Former Director-General of UNESCO (1987 – 1999)

Videos from around the globe

If you are a patient, a carer or are involved in the field of rare diseases, health and/or social policy and would like to share a statement of support or testimonial with us you may send it to