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  • About us
    • History and Mission
    • What is a Rare Disease?
    • Need for Global Action
    • Our Actions
    • Statements of support
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logo NGO Committee for Rare Diseases
  • About us
    • History and Mission
    • What is a Rare Disease?
    • Need for Global Action
    • Our Actions
    • Statements of support
  • Rare Diseases at the United Nations
    • Common Goals
    • United Nations System
  • Advocacy
    • News
    • Publications
    • Events
    • Tweets from @ngorarediseases
  • Members
    • Becoming a member
    • Inception Executive Board
  • Contact

Tweets

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Tweets by ngorarediseases

Tweets from @ngorarediseases

  • RT @eurordis: Survey now live! Is there a treatment available for your rare disease? Are you able to access it? Has the treatment resulted…6 days ago
  • Videos, presentations and statements, as well as official photos from #RareDiseaseDay Policy Event @UN are now avai… https://t.co/3hPf5xZQHm11 days ago
  • RT @Orphanet: ️ #rarediseaseday special edition of OrphaNews out today with a round up of recent international events on #rarediseases inc…18 days ago
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