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    • History and Mission
    • What is a Rare Disease?
    • Need for Global Action
    • Our Actions
    • Statements of support
  • Rare Diseases at the United Nations
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logo NGO Committee for Rare Diseases
  • About us
    • History and Mission
    • What is a Rare Disease?
    • Need for Global Action
    • Our Actions
    • Statements of support
  • Rare Diseases at the United Nations
    • Common Goals
    • United Nations System
  • Advocacy
    • News
    • Publications
    • Events
    • Tweets from @ngorarediseases
  • Members
    • Becoming a member
    • Inception Executive Board
  • Contact

Tweets

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Tweets by ngorarediseases

Tweets from @ngorarediseases

  • RT @rarediseasesint: The UN Committee on the Rights of Persons with Disabilities has an election this November. RDI supports @SifHolst-a pa…10 days ago
  • RT @eurordis: Out NOW: the results of the EURORDIS #COVID19 survey! 83% of #raredisease patients’ care was disrupted during the first w…15 days ago
  • RT @Share4Rare: Clara Hervás @ngorarediseases presented the results of #RareBarometer developed by the @eurordis on how #COVID19 affects p…16 days ago
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