Rare disease day

Rare Disease Day Policy Event at the United Nations

Second High-Level Event of the NGO Committee for Rare Diseases

21 February 2019

United Nations Headquarters, New York

Watch live on 21 February from 9:45 EST (15:45 CET) via webtv.un.org
Download the Event Programme

                                               

Hosted by

Permanent Mission of Estonia to the United Nations

with the co-hosting of

Permanent Mission of Belgium to the United Nations

Permanent Mission of Brazil to the United Nations

Permanent Mission of Cyprus to the United Nations

Permanent Mission of France to the United Nations

Permanent Mission of Japan to the United Nations

Permanent Mission of the State of Kuwait to the United Nations

Permanent Mission of the Republic of Malta to the United Nations

Permanent Mission of Romania to the United Nations

Permanent Mission of Spain to the United Nations

Permanent Mission of Sweden to the United Nations

Permanent Mission of Thailand to the United Nations

Permanent Mission of the United Arab Emirates to the United Nations

 

This event forms part of the broad strategy of the NGO Committee to work towards the achievement of the relevant Sustainable Development Goals that will contribute to better lives for the community of people living with a rare disease. It aims to present the progress achieved in the last 2 years within the human rights, health, and sustainable development agendas of the United Nations system as well as present and discuss a call towards a General Assembly Resolution on rare diseases.

                               No poverty Good health and well-being Quality education Gender equality Reduced inequalities Partnerships for the goals

 

The meeting will take the form of an all-day roundtable bringing together around 100 participants – from the international NGO community, UN agencies and national governments, academic and research institutions as well as the private sector – interested in collaborating towards the advancement of rare diseases as a global public health priority within the United Nations.

The call to integrate rare diseases within the UN Agenda was first issued at the first high-level event, which took place on November 11th 2016 at the United Nations in New York under the title ‘Global Gathering for Rare Diseases’. You may refer to the report of this event. On that occasion, the link between the rare diseases community’s goals and the UN SDGs 2030 Agenda was established and recognised by the main UN agencies and bodies (WHO, UNICEF, UNDP, ECOSOC), which opened the door to broader awareness of the issue and potential partnerships at global level.

 

Event of the

logo NGO Committee for Rare Diseases

 

         Organised by        

                                                               


Quick look at the First High-Level Event of the NGO Committee for Rare Diseases: