The NGO Committee for Rare Diseases aims to promote multi-stakeholder collaboration and actions for rare diseases within the United Nations system.


It is established under the umbrella of the Conference of NGOs in Consultative Relationship with the United Nations (CoNGO) and acts as a forum of interested parties such as NGOs from the field of rare diseases and beyond; United Nations bodies and agencies; as well as individual experts.

RARE DISEASES - A GLOBAL PRIORITY FOR EQUITY.  World Expo Dubai and Online.  28 February 2022. 10.30 - 16.30 GST
RARE DISEASES – A GLOBAL PRIORITY FOR EQUITY. World Expo Dubai and Online. 28 February 2022. 10.30 – 16.30 GST

 

 
 
 
 
 


Est. 300m

people globally


80%

of genetic origin


50%

affect children

Affect between
6-8% of the
population


6000+

rare diseases

 

Rare Disease Day 2021 official video