“WE THE PEOPLES OF THE UNITED NATIONS, determined to reaffirm faith in fundamental human rights, in the dignity and worth of the human person, in the equal rights of men and women and of nations large and small, have resolved to combine our efforts.”

Preamble to the Charter of The United Nations, 1945


For more than seven decades now, the United Nations has been working hard to advance the human condition and to deliver on their promise to “equal dignity for all human beings”.

The realisation that a multi-stakeholder, partnership-based response was needed to achieve this led the UN General Assembly to adopt in November 2015 its 2030 Agenda for Sustainable Development, which included the adoption of a set of 17 measurable Sustainable Development Goals (SDGs).

There is a clear alignment between a number of these goals and the fight to tackle rare diseases and their consequences on the lives of the affected individuals and families. The NGO Committee for Rare Diseases shall be the platform that makes that synergy visible and enables stakeholders to work together and combine their efforts towards a shared objective. Read more here.